Survey shows patient experience of neurology services has deteriorated

March 20, 2017

From the Epilepsy Society.
A survey of thousands of neurology patients, including more than 500 people with epilepsy, has shown that services to diagnose, treat and provide care are worsening across the spectrum of neurological conditions. The survey was carried out by the Neurological Alliance in 2014 and 2016, and shows that patient experience in every area has significantly deteriorated in the last two years.

Key findings:
  • 42 per cent of patients saw their GP five or more times before seeing a neurological specialist – this is an increase from 31.5% in 2014.
  • the number of patients who feel involved in making choices about health services to at least some extent dropped to 63 per cent in 2016 from 71% in 2014.
  • only 56 per cent of patients feel their health and care professionals work well together at least some of the time, against 67 per cent in 2014.

Recommendations from the Neurological Alliance includes addressing delays and diagnosis, improving access to information and care planning, local prioritisation and engagement and long term commitments to improvement. A key recommendation also includes addressing the mental health needs of those with a neurological condition.

Read full information and access the report here.

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It’s very important we hear about what is happening locally. Patient feedback is vital is helping us, and the wider health and social care system, understand where things are working well or where improvement is needed.

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