Reviews (1343)

Long waiting time for X rays

Orthopaedics
November 19, 2018
My child who is three years old has a severe global developmental delay and a rare neurological condition. She is under different consultant care in different hospitals. When she was 10 months old I noticed that there was something wrong with her hips. She has since been seen by physio, and also Heartlands Hospital Child Development Centre for the issue, and finally she was referred to Children’s Hospital Orthopaedic department, where she has only been seen once so far.
I was so concerned about her hips that I took her to a private orthopaedic consultant in Germany. They did examinations and x-rays and suggested that she needs to have an operation in her hips and legs. I then took these results to Children’s Hospital, where the consultant did not agree with the results. The consultant told us that they have to do another x-ray to determine the need for an operation, but as children can’t have it more than once within 6 months, we have had to wait a long time for the examination. However it has now been over 9 months and we still haven’t had the appointment. It has been scheduled for December, which will be ten months later. The delay in getting her legs and hips to looked at is heart-breaking. As a mum I have to witness my little daughter’s condition getting worse and worse and it is really hard. I fear that because of the delay she will have lasting effect. Her spine is going to be bent because of this. She should be already receiving treatment to support her bones and we should by now know what best care for her.
Anonymous

Reply from Birmingham Childrens Hospital

Thank you for taking the time to share your feedback with us. I am so sorry to hear that your daughters condition is getting worse and I am keen to help you. I would encourage you to get in touch with the PALs team (Patient Advice & Liaison) on 0121 333 8403 or bwc.pals@nhs.net We can then advise on options available to you and how we can support you. Best Wishes Rachel- Patient Experience Sister.


Provider responded

They were very helpful, caring and friendly.

November 15, 2018
We’ve had allergy tests for my 15-year-old daughters. They were very helpful, caring and friendly.
Anonymous

Reply from Birmingham Childrens Hospital

Thank you for taking the time to share feedback with us. We are pleased to hear your daughter had a good experience whilst having her allergy tests. Best Wishes, Rachel- Patient Experience Sister


Provider responded

Very bad experience

Accident and emergency services
November 14, 2018
Very bad experience at Birmingham Children hospital, waited for 7 hours with no support and information.
Anonymous

Reply from Birmingham Childrens Hospital

I am so sorry to hear that you had a long wait with no information provided to you. I would be keen to find out more information so we can make any necessary improvements. If you would be willing to share more information we can take this forward with the appropriate team. Please call our PALs (Patient Advice & Liaison) team on 0121 333 8403 or email us at bwc.pals@nhs.net to share more details. Best Wishes Rachel, Patient Experience Sister


Provider responded

The care we received was amazing

Oncology
October 9, 2018
I had a baby in 2009, sadly he was diagnosed with brain tumour when he was just 9 weeks old. He was looked after by staff at Children’s hospital oncology unit. The care we received was amazing, also from the Macmillan and CLC sargeant nurses. When we were struggling to finance the taxi journeys to hospital they helped us get ambulance transport instead. Our son sadly passed away aged 7 months. Children’s hospital made this traumatic experience as comfortable as possible. They let us have our own room and they let me take him home and feed him myself for the last time. I am really grateful for them.
Leah Roberts

Reply from Birmingham Childrens Hospital

Thank you for taking the time to share your comments with us. I am so very sorry to hear of the loss of your son. Please be assured that your feedback has been shared with the oncology team and support services and they are happy to know that their input made a difference to you. Sending you and your family our warm wishes.


Provider responded

Good but limited knowledge of Autism

Accident and emergency services
October 8, 2018
The Doctors and Nurses in A & E are very good, but they have no knowledge of knowledge of Autism. They do not understand the condition and the challenges. For example, one of the nurses wanted to check my son ears and I asked her to wait one minute to allow him to get used to the environment,but she just went ahead to check him which made my son anxious. At other times, they ask him to open his mouth and yet I have told them that he does not understand because he does not understand words. The Doctor has to physically open his mouth because he will not respond to instructions. They need to improve their knowledge and trust that what carers are telling them is the truth.
Anonymous

Reply from Birmingham Childrens Hospital

Thank you for taking the time to share your feedback with us. I am sorry to hear that staff displayed a limited understanding of autism, when your son visited the department. Please be assured that your feedback has been highlighted to the Emergency Dept who will address this within their team meetings and future training plans. If you wish to discuss your experience further please do get in touch with us in the PALs team (Patient Advice & Liaison) on 0121 333 8403 or bwc.pals@nhs.net Best Wishes Rachel- Patient Experience Sister


Provider responded

I am not sure what they are doing

unknown
October 8, 2018
My husband had a rare condition. My daughter, who was born immediately after my husband died, has also been diagnosed with the same rare condition as her dad. She was diagnosed when she was nine months old. Since then, she is being treated by Children’s Hospital. Although, I am happy about the care the hospital provides, I feel that they need to improve how they share information with carers. They could be prodding her for no reason for all I know, as I am not sure what they are doing. I had to flip out at them to start sharing information with me about her care.
Anonymous

Reply from Birmingham Childrens Hospital

Thank you for taking the time to share your comments. I am sorry to hear that communications have not been to our usual standard. Staff should always explain to parents/carers and the child what they are doing. If ever this doesn't happen we would encourage you to ask the staff to explain. If you would like to share more specific details with us please do contact us via the PALs team (Patient Advise & Liaison) 0121 333 8403, we can then make the team/staff involved in your daughters care, so any improvements can be made. Best Wishes.


Provider responded

Fantastic treatment Provided

Cancer services
August 7, 2018
My son has been cared for at Birmingham Children Hospital for brain tumour cancer. I can’t fault them, they have been fantastic throughout my son’s treatment. This includes a brain tumour operation.
Anonymous

Reply from Birmingham Childrens Hospital

Thank you for taking the time to share your experience. We have informed the oncology and theatre team of your comments. Sending you and your son our very best wishes.


Provider responded

Happy with care

Physiotherapy
July 27, 2018
Attended physio, and condition deteriorated. They then referred to consultant and received treatment necessary to stretch the muscles to leg. Happy with care.
Anonymous

mix up in communication

May 11, 2018
I had an early morning appointment - was stuck in traffic tried to call for 30 mins on phone nobody answered and when I got there appointment was cancelled and was told to wait for later appointment. Facilities and doctors were good. waiting time for appointment not long.
Saira Hussain

Very good & very happy with staff

Diabetic Medicine
March 12, 2018
My son is diabetic and receives regular care at the hospital. The care has always been very good and we're very happy with the staff
Saiqa Yasmin

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Birmingham Childrens Hospital

Contact

0121 333 9999

Birmingham Children's Hospital
Steelhouse Lane
Birmingham
West Midlands
B4 6NH

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